Researchers take first step in understanding disparities in community participation for people with TBI


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Researchers with VA, DOD, and other research institutions examined the effects of race and ethnicity on community participation in service members and Veterans with traumatic brain injury. The 2021 study was published in the Journal of Head Trauma and Rehabilitation.

Researchers found minimal differences in community participation between white and minority service members and Veterans, contrary to results in non-military samples. They suggested that the study results may have been influenced by supportive resources available to service members and Veterans, like employment assistance.

The single area of disparity found in the study was for Hispanic service members and Veterans with TBI. They reported more frequent outings and more community-based activities compared to white service members and Veterans. The researchers suggested this may be due to the extended family network of many Hispanic participants, which may have allowed them to get out of the house more often.

Many Veterans live with long-term consequences of TBI

Traumatic brain injury has been called the signature injury of individuals who served in Iraq or Afghanistan. During the period 2000-2020, more than 430,000 service members and Veterans worldwide experienced a TBI, according to the Defense Medical Surveillance System.

More individuals are surviving these types of injuries due to advances in battlefield medicine. However, they are living with the long-term consequences of their injuries. One such effect is a decrease in community participation, a domain that includes independence, family and social relationships, and employment.

Prior research has shown that community participation is often more difficult for Black and Hispanic individuals with TBI. They tend to have poorer outcomes in overall functioning, social integration, and employment. However, no study to date has examined disparities in community participation for individuals who are served by DOD and VA.

“Given the differences between military and non-military individuals with TBI and the resources available to service members and Veterans, we wanted to find out if Veterans would demonstrate similar differences in community participation,” said Dr. Jacob Finn. He is a staff psychologist and investigator with the Minneapolis VA Health Care System.

Study participants had moderate-to-severe brain injuries

Finn, who is a principle investigator with the VA Polytrauma Rehabilitation Center in Minneapolis, noted that participation outcomes include highly valued activities such as work, schooling, and friendships.

The team looked at 1,273 individuals with TBI who were enrolled in the VA Traumatic Brain Injury Model Systems (TBIMS) database between November 2009 and October 2017. The final sample included 342 participants who had completed follow-up surveys and who lived in the community one year post-injury. Participants were on average 38.6 years old, male, and had experienced moderate to severe TBI due to vehicular collisions (automobile, bicycle, ATV, or motorcycle) – injuries which can be comparable to battlefield TBIs.

The researchers identified three racial and ethnic groups among study participants – white, Black, and Hispanic. At the time of the study, other minority groups, like Native Americans, were not present in large enough numbers to analyze.

`Further examinations… could be fruitful’

The researchers analyzed community participation using an assessment that gauges participation across three domains: productivity, social relations, and activity in the community. Their findings were in contrast to previous studies in non-VA settings that found greater racial and ethnic disparities between non-military individuals with TBI.

The team suggested that these newer findings may be, in part, due to demographic differences between VA and non-VA patients, like higher education levels. The study authors also said minority groups likely benefitted from being part of a military community, which provides a strong support system.

Finn said there is still much work to be done for service members and Veterans with TBI. Because the military is becoming increasingly diverse, he said it is imperative that VA ensure the best outcomes for all service members and Veterans. “Any disparities that are identified through research may point to needed changes in the health care system and its programming,” he added. “Further examination of the unique aspects of military TBI populations, as well as the cultural experiences and features of racial and ethnic groups – such as experiences of prejudice – could be fruitful.”

More Information

Click here to learn more about VA research.

Author

Erica Sprey

Erica Sprey is a writer with the VA Office of Research and Development and managing editor for VA Research Quarterly Update. She joined VA in 2016 after working as a feature writer and managing editor for UBM Medica, part of ModernMedicine Network. She is a U.S. Army Veteran.

Comments

  1. Cara Ferber    

    Greater awareness of the occurrence of TBI within the military has fortunately led to advances in neuroscience, diagnostic testing, and treatment for brain injury. Thank you for highlighting the existing racial disparity and the critical need for equity in medical research and healthcare. Why have women been excluded from the research discussed in this article?
    I am the Advocacy Director of PINK Concussions http://www.PINKConcussions.org committed to increasing gender equity and inclusion of women in brain injury research, screening, diagnostic methods, medical care and rehabilitation. Please reply with any plans and initiatives integrating women or questions so I can share about the occurrence and impact of brain injury of females caused by military service, sports, violence and motor vehicle accidents. Thank you.

  2. James Michael McFadden    

    How much longer will we have to see our veteran’s benefits be doled out to people who have never heard a shot fired in anger … nor suffered TBI … who continue to increase our national divide with research that is directed at comparing and publishing “differences” between “outcome” … all the while making sure that the results indicate MORE similar research is required to conclude what this research was unable to accomplish …. do I I hear the cash registers ringing ? … meanwhile where is the money going that should be funding treatment that is being “considered” for the remainder of us?

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